He is so big that he understands that this fight is going on for his life. He is brave enough that he doesn't stop fighting. But without us – Dear Ladies and Gentlemen – nothing will work. Five -year -old Krzyś Zawada faces the worst and ruthless opponent – with a disease that causes a slow disappearance of all muscles. There is a way to help him and that he returns to full health, but therapy in the United States is horrendously expensive. But there are Christmas. And on holidays we can afford more. In this faith that it will succeed.
Żurek is his favorite Easter dish. – And meat and eggs and dairy products. It eats everything, so we don't have a problem with that. Just in kindergarten – from what I talked to the teacher – he eats everything – says Łukasz Zawada, Dad Krzysia.
Krzyś has a great appetite for life. He is a hit five -year -old. It looks healthy but is seriously ill. – We did everything in our power. All pregnancy tests. There was no indication that we had a problem with pregnancy. Anyway, Krzysiu was born very healthy, weighed 3700 and got 10 points, so we really enjoyed the son from the very beginning – says Łukasz Zawada.
He has been fighting bravely since birth
The dramatic diagnosis came 12 months later. – Great pain, we didn't really know what to do with my wife – says Łukasz Zawada.
– It was a blow to the heart. Both with my husband just remember this day when we fell to the ground and cried. When Krzyś was a year old, it didn't enjoy us at all. He was lying on his tummy, he didn't even try to crawl, he just tried to cram, he didn't sit down. It was really the worst time in our lives – says Anna Zawada.
See also: Krzyś suffers from muscle dystrophy. The disease can be stopped by expensive therapy in the USA
Krzyś suffers from Duchnne's muscular dystrophy – a very serious and very rare genetic disease that only affects boys. Leads to a progressive and irreversible muscle atrophy and ultimately to death
– boys with this disease lack protein in the muscles. Protein binds muscles with each other, regenerates them and repairs them after everyday fatigue. However, these boys with this disease have very much protein in their muscles. Krzysio has this gene damaged in 16 points. This is very large. Some boys have at one point, others in two – indicates Anna Zawada.
They lived with the awareness that their son would die in suffering
Krzyś has been fighting bravely since birth. His parents also fight for every day and every move. For years, they lived with the awareness that their son would die in suffering. Two years ago a miracle became, a drug was invented that can change their fate.
– Learn about the drug that it is already a great joy. In fact, information about the sum brought us to Earth – says Łukasz Zawada. At that moment he was not achievable for us – he adds.
He is five years old and suffers from muscle dystrophy. The collection is underway so that Krzyś can enjoy healthStefania Kulik/Fakt in the afternoon TVN24
17 million zlotys – this is what gene therapy costs, available only in the United States.
– It is a nightmarish disease, although this disease can be interrupted by administering the drug. This drug, of course, will not undo what this destructive disease has already done here in the body of these children, but will stop this disease, i.e. give these children a chance – indicates Bartosz Zmyślony from the “Siepomaga” Foundation.
Krzyś himself is fighting for every zloty
Krzysia already shows the progress of the disease. The boy cannot pass by more than 150 meters alone. He has more frequent and stronger calf contractures, Achilles's shorter and shorter tendons. Walking causes him pain, but he fights with his parents for every zloty. He goes to the fair himself, distribute leaflets, asks for help.
Money is collected for cans and In an online collection launched two years ago.
– He is very happy because he waits for all the cakes to go down, that there are a lot of money – says Aunt Krzysia. – Waiting for a trip to be healthy – he adds. And there is less and less time, because the condition for administering the drug is the child's independent movement.
– We had consultations with Boston and they would like to see Krzysia this year, at the latest in September, so we really have little time to collect this money and save our son – says Anna Zawada.
Almost seven million zlotys is still missing from the collection account, but Krzyś is not going to give up.