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There is not much time, and a few million is missing to the destination. A concert was organized in Łódź to help Krzysia

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There is not much time, and a few million is missing to the destination. A concert was organized in Łódź to help Krzysia

Source: Katarzyna Czupryńska-Chabros/Facts in the afternoon TVN24

It was a common gesture of heart, hope and solidarity. A charity concert took place at the Music School in Łódź, from which all income will be donated to the treatment of Krzysia Zawada. The boy suffers from an incurable disease – Duchnne's muscular dystrophy. The hope of stopping the progression of the disease is the US gene therapy. There is not much time and the cost of treatment is over PLN 17 million.

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He was brought to the stage by his dad, because he is becoming more and more difficult for Krzysia Zawada, but the 5 -year -old – along with the whole army of people supporting him – in a arduous fight for life he does not give up.

– I was sick myself, I managed to get out of this disease unscathed, so maybe it is just that I simply pay off the debt of gratitude, because we are completely strangers. We met Krzysia at collections under the church – says Mrs. Iwona Pępietska.

The boy needs an astronomical sum of money, as much as 17 million zlotys – he is weakening and should take a larger dose of steroids until he gets this medicine to keep it in the best form, but, unfortunately, we do not have money for the medicine – says Mrs. Anna Zawada, Krzysia's mother.

There is more and more money, but there is a few million zlotys to the goal. – We have to collect this money as soon as possible. It would be best until September – says Łukasz Zawada, Dad Krzysia.

It is known that Krzyś suffers from the muscular dystrophy of Duchnne, since he was one year old. This is a rare genetic disease that affects only boys. The patient muscles lack protein, which causes irreversible muscle atrophy, and finally suffocation.

– Slow dying in suffering, because it is not such dying from day to day, but it is a huge pain. Krzysi is already suffering from pain, because at night he wakes up with screaming, she has calf cramps – emphasizes Krzysia's mother.

Boys with muscle dystrophy usually stop walking before the age of 12, die before twenty. Krzysia's relatives lived with the awareness that it would be so with him, but in 2023 the first medicine was allowed and the only medicine that stops the progression of the disease. Genary therapy in the United States must be given before the boy stops walking.

He is five years old and suffers from muscle dystrophy. The collection is underway so that Krzyś can enjoy health

Source: Stefania Kulik/Fakt in the afternoon TVN24

Charity concert for Krzysia in Łódź

Students of the Music School Complex Stanisław Moniuszko in Łódź on Friday played for Krzysia. – It was the most difficult to find a deadline, while there was no shortage of those willing for this concert – admits Paweł Zapart, director of the Music School Complex Stanisław Moniuszko in Łódź.

– The awareness that we can help such a child is priceless – emphasizes Mateusz Czeszczyszyn, violinist and student of the Music School Complex S. Moniuszko in Łódź. – An amazing feeling, such an internal fulfillment that we could do something good for such a small boy. It is nice inside – adds Justyna Jara, a clarnecist, a student of this school.

The boy's parents are very grateful for organizing such an event. – My wife and I didn't have the opportunity to relax before, they have a bit of culture, because we are terribly finished, so today it gave us such a reflection, such full of energy – confesses Mr. Łukasz Zawada.

– This is a day and night fight, because it is known, it is a fatal disease and we are fighting for Krzyś not to sit in a wheelchair (so that he does not need a wheelchair – editor's note) – reminds Ewa Półzińska's volunteer. Rehabilitation is Krzysia's everyday life. Each zloty paid introduces him to realize the most important dream: stopping the progression of the disease. Thanks to this, the boy will have the chance to fulfill the next one: to play football with his dad, or become a tram driver or a bus driver.

The collection for Krzysia is conducted on the Siepomaga.pl platform. The TVN Foundation also joined the help. All collected funds paid to the Foundation's account with the note “For Krzysia” will be transferred to the boy's treatment. Payments can be made through the Foundation's website https://fundacja.tvn.pl/.



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