“My movement is very limited,” Wojciech Sawicki, who runs the Life on Wheelz profile on Social Media, on TVN24. The guest of the “Post and Weekend” program suffers from the incurable muscular dystrophy of Duchnne. The TVN Foundation joined the aid for five -year -old Krzysie, who is also struggling with this rare disease leading to muscle atrophy.
Wojciech Sawicki suffers from the incurable muscular dystrophy of Duchnne. Since 2018, he has been running the Life on Wheelz profile in social media, where you can follow information about the daily lives of people with disabilities. Sawicki was a guest of the Saturday program “Stand up and weekend” on TVN24.
“My movement is very limited, I can't move,” he said. During the conversation he remained in the lying position. Sawicki talked about an assistant who helps him prepare for ordinary, daily activities, such as dressing or using the toilet. The interlocutor TVN24 also said that “depending on whether he has strength, he goes out for the air and sometimes for a walk.”
“I must always be accompanied by an assistant or another person without whom I can't manage,” he admitted.
“All my life activities are either replaced by machines or by other people who give me a gel or anything,” he continued, adding that his “physical independence is limited to a minimum.” He also mentioned that during a conversation with TVN24 “the computer supports with the help of sight.”
Wojciech Sawicki, guest of the “Stand up and weekend” program Tvn24
Therapies delay the development of the disease
The TVN Foundation has joined in help for five -year -old Krzysztof Zawada, who is also struggling with this rare disease leading to muscle atrophy.
All collected funds paid to the Foundation's account with the note “For Krzysia” will be transferred to the boy's treatment. Payments can be made through the Foundation's website https://fundacja.tvn.pl/.
At such an early stage of life there are chances to improve the functioning of five -year -old Krzysie.
“It is possible, as a child I have never received such a chance,” said Sawicki and added that the perspective of the fact that the disease was incurable was “terrifying” for him.
– (Currently – ed.) Therapies are at an early stage, but they already give decisive results. The idea is to delay the development of the disease – he said. He admitted that when he was a child, “powerlessness” was the most difficult for him. – I saw my body weakens. I couldn't do anything about it. It was (for me – ed.) Very difficult. Especially since I learned to swim and ride a bike, and then this disease took everything away from me – he said.
Mental support is important
The interlocutor of TVN24 also said that the state should take care of those who suffer from this incurable disease. – Sometimes every day I get new collections about this disease and they are all for some horrendous amounts. It is terrifying for me – he said. “And that it depends on whether your child will have a chance to survive,” he added. He emphasized that he is also terrified by the fact that in Poland many things need to be financed from private collections.
Sawicki emphasized that in the case of Duchenne's muscular dystrophy, not only the sick, but also his whole family suffers. That is why psychological support is also important, especially in the first years when such a diagnosis is falling.
The news about the disease is a shock to the whole family – emphasized Sawicki. – Psychological support is important not to blame yourself – said TVN24 interlocutor and added that nowadays such psychological help is quite real.
Source of the main photo: Tvn24