Krzyś is five years old and suffers from muscle dystrophy. The rescue is treatment in the United States, and it costs dearly. PLN 17 million must be collected for therapy in Boston. The TVN Foundation was involved in help – all funds paid to the foundation's account with the note “for Krzysie” will be transferred to his treatment. Krzyś and Parents also take matters into their own hands – as part of the Easter fair, they collect themselves.
Something that most five -year -olds do alone, Krzysi fails even with the help of her older sister. Diagnosed when he was one year old, Duchnne's muscular dystrophy, a genetic disease that only affects boys, despite the daily, difficult and tedious rehabilitation, makes itself felt more and more.
– It weakens day by day. Yesterday he said that he is very hurting his feet, that he was tired, he generally says that he has had enough collections, because he would already want it to end – says Anna Zawada, mother of Krzysia.
We know what Krzysia's future will be if you can't collect almost PLN 17 million. – At the age of eight he will be convicted of a wheelchair, the disease also attacks the respiratory system, attacks the heart, so it will be weaker. Boys die with this disease even at the age of seven-and-life. The disease also attacks the intestines – indicates Anna Zawada.
Krzyś is damaged in a dozen or so places the gene responsible for muscles. They lack protein, the muscles disappear. That is why he is threatened with a wheelchair and even suffocation.
The boy and his loved ones sell what they can. Aunt baked sweets. – Apple pie, radomianka and cake so biscuit – says Renata Wójcik, Aunt Krzysia.
Money is collected for cans and In an online collection launched two years ago – Immediately after the only medicine appears on the market, which can stop the development of the disease. In the meantime, the cost of gene therapy in the United States increased.
There are no seven million zlotys
– We broke a bit a bit, because we know: it's two million more, so it started to move us a little from this purpose – says Łukasz Zawada, Dad Krzysia.
After materials in “Facts” of TVN and TVN24, another millions have funded the collection account, but to be able to start treatment, there are still more than seven million zlotys.
– The drug will cause protein expression in the muscles, which is not at this point. I can't imagine visiting my son's grave – says Anna Zawada.
The drug must be given as soon as possible. Krzyś, although in such circumstances may seem healthy at first glance, already clearly has calf contractures, Achilles tendons are shortening. He has less and less strength to walk. He uses a stroller, sleeps in orthoses.
Krzyś suffers from muscle dystrophy. The disease can be stopped by expensive therapy in the USAStefania Kulik/Fakt in the afternoon TVN24
– He got a bike last year and this bike is waiting for him in the basement and this is the first thing we will do when we get back from gene therapy – says Anna Zawada.
Its current cost is guaranteed only until September. Later it may change again. – There is only one company that has this medicine. We just have to roll up my wife's sleeves. Try as much as possible and pray, and just collect money – says Łukasz Zawada.
For those who know Krzysia, and for him this is now the most important thing. – Dear, a bit rude, but lovely – says Renata Wójcik, aunt Krzysia.
– Krzyś knows why he is here. He already got up at six in the morning, he was already waiting for him to come here, he helped us unpack the things we got from people from all over Poland – says Anna Zawada.
The TVN Foundation also joined the help for Krzysia. All collected funds paid to the Foundation's account with the note “For Krzysia” will be transferred to the boy's treatment. Payments can be made through the Foundation's website https://fundacja.tvn.pl/.
Facts in the afternoon tvn24
Source of the main photo: Tvn24